Random Thoughts and Musings

Hi everyone

Again, thank you for following along and offering your emotional/mental support, prayers, warm thoughts, and positive vibes. C & B feel very blessed to have my extended ‘net family pulling for them. And I am grateful for the venue to vent, bitch, and moan so that when I talk to C & B or see them, I can be warm and happy and full of positive energy!

Today, Baby S has had a good day. They’ve moved her back to an infants & toddlers room … but are still discouraging visitors.

Baby S had another blood transfusion earlier in the day, and C & B said that she had been looking much better for most of the day. She was laughing and showing far fewer signs of pain and agitation. Her appetite also picked up, and she kept C awake all night, nursing every hour (YAY!). These are good things.

Towards the end of the day, though, her stomach was hard and distended. She *may* be bleeding into her stomach again. The surgeons came in to check her, and said she’s not showing real signs of bleeding out, but they will be checking on her throughout the night to be sure.

All in all, it has been a good day. I miss my best friend. I miss the baby. But I’m glad she seems to be responding positively to everything so far. Chemo starts Monday or Tuesday. I’m not sure which anymore (everything is CONSTANTLY changing!).

We’re just continuing to smile and we’re choosing to be happy today. We will take every little bit of good news we can get at this point. And lil Baby S is STILL smiling and cooing tonight.

Thank you everyone … I will continue to update as things continue to happen.
xo

I’m just going to collect the texts that I sent out to my friends, and put them in one place for those of you who want to keep up with what is going on.

Baby S has been recovering well from the biopsy they performed (my whole week is run together, so I can’t remember if the biopsy was Wed or Thurs … I *think* Wednesday). She’s in a lot of pain, and not nursing, so being fed thru IV. The procedure confirmed hepatoblastoma (Liver cancer) stage 2, erasing any remaining hope for a non-cancerous tumor. Baby S confined to PICU. She starts chemo on Monday. Will be in hospital for at LEAST one more week. Will have 1-2 sessions before surgery to shrink tumor. The surgery will be in a few weeks. Then, a few days of recovery and follow-up chemo to make sure it is gone. She will not be allowed contact with anyone but Mom until after this is all said and done. BFF is concerned about the effect on the other kids. I’m worried about all of them. BFF has to shut down her daycare, so that is huge loss in income, coupled with huge amounts of new expenses.

Here’s the official biopsy report:

Mixed epithelia-mesenchymal type with embryonal/fetal components & fibrotic spindaled cells with osteoid.

The liver biopsy shows both types of patterns on permanent section including fetal type & embrional type patterns. there is extramedullary hematopoiesis seen in association with the fetal component of the tumor.

Favor cellular liver parenchyma.

I am not sure about the particulars of everything, but basically she doesn’t have the *worst* kind of liver cancer (the one with only 20% chance of survival) but she also doesn’t have the kind we hoped she had (that has a 100% chance with no chemo).

All of this is insane. I wish circumstances were different, and I could take a few months off of work to help care for Christy, the other kids, and Baby S. I know it is going to be a rough road ahead.

Thank you, all of you, for your continued prayers, well wishes, warm thoughts, and positive vibes. We can use all of that now, and into the next few months. I hope that the treatment is far less challenging than the diagnosis process.

xo