09 Aug

Baby S … update.

Posted by: Devyl Gyrl

I’m just going to collect the texts that I sent out to my friends, and put them in one place for those of you who want to keep up with what is going on.

Baby S has been recovering well from the biopsy they performed (my whole week is run together, so I can’t remember if the biopsy was Wed or Thurs … I *think* Wednesday). She’s in a lot of pain, and not nursing, so being fed thru IV. The procedure confirmed hepatoblastoma (Liver cancer) stage 2, erasing any remaining hope for a non-cancerous tumor. Baby S confined to PICU. She starts chemo on Monday. Will be in hospital for at LEAST one more week. Will have 1-2 sessions before surgery to shrink tumor. The surgery will be in a few weeks. Then, a few days of recovery and follow-up chemo to make sure it is gone. She will not be allowed contact with anyone but Mom until after this is all said and done. BFF is concerned about the effect on the other kids. I’m worried about all of them. BFF has to shut down her daycare, so that is huge loss in income, coupled with huge amounts of new expenses.

Here’s the official biopsy report:

Mixed epithelia-mesenchymal type with embryonal/fetal components & fibrotic spindaled cells with osteoid.
The liver biopsy shows both types of patterns on permanent section including fetal type & embrional type patterns. there is extramedullary hematopoiesis seen in association with the fetal component of the tumor.

Favor cellular liver parenchyma.

I am not sure about the particulars of everything, but basically she doesn’t have the *worst* kind of liver cancer (the one with only 20% chance of survival) but she also doesn’t have the kind we hoped she had (that has a 100% chance with no chemo).

All of this is insane. I wish circumstances were different, and I could take a few months off of work to help care for Christy, the other kids, and Baby S. I know it is going to be a rough road ahead.

Thank you, all of you, for your continued prayers, well wishes, warm thoughts, and positive vibes. We can use all of that now, and into the next few months. I hope that the treatment is far less challenging than the diagnosis process.

xo

3 Responses to “Baby S … update.”

  1. perpstu Says:
    August 9th, 2008 at 10:42 am

    Thank you for the update. I spent a good portion of last night thinking about little S and wondering how she was doing. I will keep all of you in my thoughts and prayers.

    If you need me, you know how to find me. (((HUGS)))

    XOXO

  2. badseedjenn Says:
    August 9th, 2008 at 11:32 am

    I will continue to pray for Baby S and the family. My prayers are also with you, hun. Keep your strength up as your friend will need you now more than ever. Prayers can move mountains.

    Much love,
    Badseedjenn

  3. Devyl Gyrl Says:
    August 9th, 2008 at 9:42 pm

    Thank both. You’ve been incredibly supportive, and it is always wonderful coming here or to Plurk and seeing messages of love and support. It reminds me I’m not *alone* and that I have my own support system in place.

    Ya’ll are amazing. Thank you!

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