Random Thoughts and Musings

I spoke with C a little while ago, and she says that Baby S is in a great deal of pain, more than she should be after doses of morphine during the day and early afternoon and fentanyl through the late afternoon and evening.

The doctors drew some blood and will be running some tests to make sure lil Baby S does not have any infections or complications. Right now, it is just a precautionary measure … one that worries us nonetheless.

I cannot imagine how hard it is for B & C to sit there and watch her writhing and fussing in pain, unable to do anything to ease her discomfort.

Okay, got C’s update on the tests before I published this blog. The tests came back fine, and Baby S is resting a little easier now.

As always, I will update as I get new info.

xoxo

These were sent to me, so I thought I would share with all of you …

xoxo

The other day, my friend @PerpStu posted a meme, and I need something light-hearted to blog today. Therefore, I have stolen it and filled it out for myself

If I were a liquid I’d be… the ocean … and if could be particular, I would be the mist of the ocean as it crashes upon the shoreline or the rocks of a jetty.
If I were a metal I’d be… platinum.
If I were a tree I’d be… a blue spruce tree.
If I were a fruit I’d be… a strawberry - my favorite!
If I were a flower I’d be… an orchid … again, my favorite!
If I were weather I’d be… warm sunshine with a cool breeze tickling your hair, after a refreshing rain on an early spring day.
If I were a music instrument I’d be… a harp.
If I were an element I’d be… fire: destructive but beautiful, dangerous but healing, serious but thrilling.
If I were a color I’d be… Green … the shade would depend on my mood.
If I were a feeling I’d be… loving.
If I were food I’d be… comfort food or soul food: something that brings not only sustenance, but love and comfort and togetherness.
If I were a sentence I’d be… an exclamatory sentence.

So, Baby S - true to form - has come out of the surgery with flying colors. I have not received another report since she went into PICU, but from what I understand, she had minimal difficulty during the surgery itself. I am grateful for that (as are her parents!).

Now, she will be on the road to recovery! She will remain in the hospital through the rest of the week, and possibly the weekend, and then she will have another 1-2 weeks before she starts her follow-up chemotherapy. I know they do not want to wait too long, in case they missed *anything* (which they do not think they did), and they do not want to do it too soon, because she needs time for her little body to heal.

Again - thank you so much for the outpouring of love, light, and prayers during all of this … you’re all wonderful friends (and family) and I cannot thank you enough. It helps, knowing there are so many people thinking of her, asking about her, and hoping, praying, and wishing she will make a full recovery.

I will continue to update everyone as things move along, and as I am given information.

Update: I just received another text from C - they were able to go back and see Baby S finally.  She hasn’t given me any more info, so I believe they are busy holding and loving her. When I do get info, I will post! She did mention that B was witness to a damn shootout in the parking garage: WTF, buttercup????

Today is the biggest day in Baby S’s life so far - and she’s had some pretty big ones, the poor thing. She was wheeled into the operating room a few moments ago.

Her surgery will consist of removing the outer half of the right side of her life. Thank goodness the chemotherapy she has been subjected to for most of her very young life (just 4.5 months, ya’ll) worked. The tumor shrank by nearly half, so they are predicting they will be able to preserve the inner half of the right side of her liver as well as the whole left half of her liver. This is far better than the outlook a couple of months ago.

So now, I sit and wait. I will receive text updates from C whenever the doctors send updates out to her and B in the waiting room. I want nothing more than to be with my best friend right now, holding her hand and comforting her and her husband as they wait to find out if their baby girl will wake up after surgery.

Thank you for all of your light, love, and prayers as Baby S continues to live through her own personal nightmare. Whenever I picture her in my mind, it is with that full-face smile she gives whenever anyone looks at her, talks to her, or even moves towards her from across the room. She’s such a happy baby. I cannot wait to hold her again!

xoxo