Baby S ~ Bad News, Again
Posted by: Devyl GyrlMany of you have seen me Plurking/Tweeting about Baby S power puking every day a couple of times a day from the chemotherapy over the last two weeks. We were told it is because the body weakens with each round of chemo, and hers is less able to recover properly. She has been taken back off solid foods and ONLY receives nutrition through nursing (for the last two weeks), and we do our best to make her nurse for only 5 minutes at a time to keep her belly from feeling overwhelmed.
Earlier this week (Wednesday), she had “clinic,” where she receives her follow-up treatment for the 2nd and 3rd weeks of every round of chemotherapy. At clinic, they always draw blood and test her Alfa-fetoprotein levels - these are basically tumor markers. For Baby S, because she is still a baby, “normal” AFPs should be around 50-80. She is once again showing AFP’s over 100.
The doctors are stumped, and concerned. She is being sent to St Jude’s for a Positron emission tomography (or, PET scan). This is a radiological scan that will (hopefully) help them determine what is going on inside her little body.
This is all the information I have to date. I will of course update you as much as possible, whenever I have anything new. We do not even know, at this point, when the appointment at St Jude’s will be, as they have to fill out all the paperwork, fax it up, then wait for an appointment time.
Thank you for keeping Baby S in your thoughts and prayers. Please continue to do so.
xoxo
January 2nd, 2009 at 1:23 pm
I’ve been following your blogs for a couple weeks now but haven’t commented…just wanted to let you know that my thoughts and prayers are with you and Baby S. May the new year bring you all hope and healing.
Kara’s last blog post..Snowed in!
January 2nd, 2009 at 1:29 pm
As always… thoughts and prayers are being sent in abundance and with vigor…
January 2nd, 2009 at 2:03 pm
This poor baby has been through so much. I’m sending extra intense prayers out for her.
Becster’s last blog post..Looking forward
January 2nd, 2009 at 3:10 pm
That poor baby! Prayers going up!
NotAMeanGirl’s last blog post..2009 Time to Shine
January 2nd, 2009 at 3:17 pm
My heart is breaking for her and the turmoil her family is going through. I will continue to lift them all in prayer. Much love to all of you!
Kat’s last blog post..New Year, New Me?
January 3rd, 2009 at 1:39 am
she and you and the family are in my thoughts and prayes each day hunni {{luv you}}
January 3rd, 2009 at 7:35 am
I continue to pray….
topsurf’s last blog post..Second Chance
January 3rd, 2009 at 8:17 am
St. Jude’s is a fabulous facility. My continued prayers are with Baby S, her family and you.
Tara R.’s last blog post..It’s good to be home!
January 3rd, 2009 at 9:41 pm
You are all in my prayers every day and every night…..
XOXOXO
perpstu’s last blog post..This is no freakshow, it’s a circus!